Support FARA (FriedrEichs Ataxia Research Alliance) to help find the Cure and a more comfortable way of life for those in need.

  Friedreich's Ataxia, known as FA, is an inherited disease that damages your nervous system. The damage affects your spinal cord and the nerves that control muscle movement in your arms and legs. Symptoms usually begin between the ages of 5 and 15.
The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances. FARA was founded in September 1998 by a group of patient families and three of the world’s leading FA scientists — Drs. Rob Wilson, Bronya Keats, and Massimo Pandolfo. Founded: 1998 Country: USA Status: 501(c)(3) non-profit organization Focus: A research alliance that drives treatments and a cure for Friedreich’s Ataxia  

 We don't just offer funding, we offer these Patient Ambassadors the opportunity to be heard, to tell their stories. You will be amazed at the positive attitudes and great accomplishments.
The Ambassadors are a service team within the FARA organization. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community. Together we seek to know more about the research and pharmaceutical pipelines being developed through FARA in order to be better prepared to represent the FA community when opportunities arise to educate the medical community and potential donors. When meeting with scientific groups, pharma partners, and the FDA, our purpose is to promote awareness of the patient perspective of living with FA. We believe our dedicated support is key to continued success toward our ultimate goal of treatments and a cure.

The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA